Rett Syndrome Symptoms, Causes, and When to Seek Help
Rett Syndrome Symptoms, Causes, and When to Seek Help
Mar 17, 2021
autism360.com
This is what a Rett episode looks like. It looks like a seizure, but the EEG never picks it up as one.. These episodes always look different - mild to severe. This one being more severe as she goes limp. Her body loses control, leaving her trapped in there. Almost like a coma😔 It is hard watching your child go through this AND more.. #rettsyndrome #rettepisode #seizure #epilepsy #sadvideo #fuckrettsyndrome #eeg #ditlwithrett #seizuredisorder #raredisorder #rettyforacure #fyp #foryou | Jays Rett
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This is what a Rett episode looks like. It looks like a seizure, but the …
12.5K views4 months ago
FacebookJays Rett Journey
Documentary 'Magnolia's Hope' shows family's struggle with Rett syndrome
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Documentary 'Magnolia's Hope' shows family's struggle with Rett …
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TODAY.comJenny Tesler
The Fitness Way to Cope on Instagram: "💜Rett syndrome💜 is a rare genetic neurological disorder. It primarily affects girls and impacts brain development, leading to loss of purposeful hand skills, impaired communication, and difficulties with motor control. 💜Rett episodes 💜 are a nervous system response caused by dysfunction in the brain’s regulation of movement and autonomic control (like breathing, heart rate, and muscle tone). They are not caused by abnormal electrical activity in the bra
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The Fitness Way to Cope on Instagram: "💜Rett syndrome💜 is a rar…
9.7K views2 months ago
Instagramthefitnesswaytocope
TheFitnessWayToCope on Instagram: "We almost didn’t make it to horse therapy today. Rett episodes tried to stop us from getting here today. But once she’s on the horse, she’s safe — she’s never had an episode while riding. #specialneeds #mom #epilepsy #rettsyndrome #vagusnerve"
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TheFitnessWayToCope on Instagram: "We almost didn’t mak…
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Instagramthefitnesswaytocope
The Fitness Way to Cope on Instagram: "Milann has Rett syndrome, and like many children with this condition, she’s at high risk for seizures. Some are obvious, and some are subtle, that’s why EEGs are so important: they show what’s happening in her brain in real time. This is her first at-home EEG, so she can move around freely while being monitored. We’re trying to get to the root of the problem, especially since she’s been complaining of headaches right before episodes. Watching these episodes
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The Fitness Way to Cope on Instagram: "Milann has Rett syndr…
11.8K views2 months ago
Instagramthefitnesswaytocope
Sometimes Rett episodes happen before she even gets out of bed. That morning was one of those mornings. And it made me think about something that happened on that Florida trip. When my aunt and I left to get food, she said to me, “You know people can tell something’s wrong with her, right?” I said, “Because of the way she’s been acting?” And she said, “No. The way she looks.” That messed me up. I wasn’t even hungry anymore. As special needs parents, we already carry the weight of knowing the wor
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Sometimes Rett episodes happen before she even gets out of bed. T…
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