The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Each type of EDS has its own set of features with distinct diagnostic criteria. Some features are seen across all types of EDS, including joint hypermobility, skin hyperextensibility, and tissue fragility. Dr. Clair Francomano provides an overview of the Ehlers-Danlos syndromes (EDS), discussing symptoms, impact on daily life, and

Classical Ehlers-Danlos syndrome (cEDS) is a heritable connective tissue disorder that causes joint hypermobility, skin hyperextensibility (stretchy skin), and skin fragility. People with cEDS have fragile skin that is very easily and extensively damaged. Minor trauma can cause large wounds that result in atrophic scarring from a young age in people with cEDS. Watch this video from Dr. Clair Francomano about cEDS signs and symptoms on YouTube: https://youtu.be/wcPht8VxhC0?si=zcGX2KY7JyE8M05y Lea

The Ehlers-Danlos syndromes (EDS) are a group of 13 heritable connective tissue disorders. The conditions are caused by genetic changes that affect connective tissue. Connective tissue is found throughout the body, where it provides support, protection, and structure to other parts of the body. Connective tissue disorders are caused by issues that prevent connective tissue from functioning properly. Collagen is the primary component of connective tissue. There are different types of collagens wi

A diagnosis of Ehlers-Danlos Syndromes (EDS) or Hypermobility Spectrum Disorder (HSD) is not just a label. It is validation, credibility, and often the key to accessing proper care. On last week’s episode of Bendy Bodies, I talked with Lara Bloom, CEO of The Ehlers-Danlos Society, about why naming and classification matter deeply for people living with these conditions. Scientists may see terminology as a technical choice, but for patients with EDS and HSD, the name determines whether their symp

What we wish you knew about Ehlers Danlos Syndromes & Hypermobility Spectrum Disorder this EDS & HSD Awareness Month! 1.EDS & HSD are a spectrum & can affect people with the same type very differently, with a wild variety of symptoms. Some people can live & work relatively normally, others need lots of surgeries & others can be very disabled & need various mobility aids, from wheelchairs to feeding tubes. 2. They have so many complications or comorbidities that can occur all over the body. I, fo