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Oct 2, 2024 · Need to know. Becoming educated and informed about hemophilia is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes. Get informed.
What is hemophilia? | Hemophilia News Today
May 7, 2024 · Hemophilia is a rare disorder with three main types, each with symptoms of easy and prolonged bleeding, caused by a lack of clotting factors.
News Archives - Hemophilia News Today
Bleeds in acquired hemophilia A safely prevented with Hemlibra. Hemlibra (emicizumab) effectively prevented bleeds in patients with acquired hemophilia A (AHA), according to real-world data from a single center study in Japan.
Gene Therapy - Hemophilia News Today
Gene therapy for hemophilia involves using a modified virus (which does not cause disease) to introduce a copy of the gene that encodes for the clotting factor that’s missing in patients. Following treatment with the virus, patients should begin …
FDA Approves Hemgenix, 1st Gene Therapy for Hemophilia B
Nov 23, 2022 · The first gene therapy for adults with hemophilia B — branded as Hemgenix (etranacogene dezaparvovec) — has been approved by the U.S. Food and Drug Administration (FDA).
Hemophilia symptoms: Early signs and complications - Hemophilia …
Oct 18, 2023 · Hemophilia is a rare disorder in which the blood doesn’t clot properly, resulting in the disease’s hallmark symptoms of bleeds — excessive bleeding that extends over a prolonged period of time — that in turn leads to other complications. Bleeds can occur outside the body (external bleeding) or within the body (internal bleeding).
What causes hemophilia? - Hemophilia News Today
Oct 13, 2023 · Hemophilia, a disorder characterized by excessive bleeding, is caused by the lack of activity of certain clotting factors, which are proteins that are needed to form blood clots. Most cases of hemophilia are the result of mutations in a gene that provides instructions for making a specific clotting factor protein.
About Us - Hemophilia News Today
Hemophilia News Today is a digital platform intended to provide the hemophilia community with the most recent news and information on the disease, as well as first-hand community perspectives from our patient and caregiver columnists.
Hemophilia treatment options | Hemophilia News Today
May 7, 2024 · Hemophilia treatment can increase life expectancy. Treatment options include factor replacement therapies, bypassing agents, gene therapy.
Building your hemophilia B community | Hemophilia News Today
Jun 3, 2024 · You can find Hemophilia News Today on Facebook, X, and Instagram. These virtual communities coordinate groups where people and families affected by hemophilia B can connect, ask questions, share advice, and offer support to one another.